Thursday, August 28, 2014

Sidewalks Are My Nemesis (and other news!)

Oops! I'm long overdue for an update! The latter part of summer was a mixed bag...

It was AWESOME to catch up with my high school friends...We had a sleepover and we stayed up until 6 AM (an excellent decision until about 6:30 PM the next day), made cookies (kinda...we tried to make them into shapes but some of them ended up looking like shapeless blobs), watched movies (FINDING NEMO!), played board games, and finished off the day by doing the ice bucket challenge out of support for one of our other friends whose dad has ALS. 

Then, as a family, we went up to our cabin in the mountains for a weekend of ATVing, canoeing, roasting marshmallows by the campfire, berry-picking, exploring the shops in the nearby port city, and reading books. It was an awesome getaway!

THEN (and here's where things get a little dicey!) ~ one of my dogs developed a lump on her head after our remaining cat hit her in the face. The first vet we brought her to thought nothing of it, but it continued to get worse until she could barely open her eye, so we brought her to a second vet. He identified it as an abscess because the cat must have had some bacteria on her claws when she scratched the dog. My poor dog had to have surgery on her head. :-( When we went back to the vet's to pick her up after the surgery, she was whimpering and crying, and she looked like Frankenstein. I'll spare you the gruesome details, but half of her head was shaved, and she had two holes in her head with a string coming out of them so that the abscess could continue to drain. 

A day later, on Thursday, I had to leave for college. It was hard to leave my poor dog, but on the bright side, my room looks awesome so far! I got tired of searching for posters, so I made my own with an image editing program. I was really happy about how they turned out, and I decided to make a few of them Harry Potter themed because I love Harry Potter. :-) (Honeydukes is the candy store in the Harry Potter series, in case—gasp!—you haven't read the books.) I even have a little reading nook where I can curl up with a book! The pictures don't do it justice, but I thought it'd be nice to offer a few visuals for a change!

My first couple days back have been pretty good so far, albeit exhausting!

Adjusting to the pace of school is hard for everyone, but is it fair to say that it's a bit harder when you've got CP? Yesterday, my friends stopped by my room and asked if I wanted to sit out on the grass with them—a fifteen minute walk. I hesitated—should I save my energy?—but they pressed a little and I decided to just go for it. They're very considerate in that they walk at my pace without comment and I'm glad I joined them! Sometimes, though, I wonder what it'd be like to not have to worry about something as simple as walking.

Tonight we had a picnic dinner to celebrate the start of classes, and to be honest, I was kind of dreading it. Last year's was awful—they hosted it almost off-campus, across tons of sidewalks, up hills, and down stairs without railings, and then they crowded us all together in a paved area to get our food. From there, we had to carry our food across MORE SIDEWALKS to find a place to sit. It was one of those situations where I didn't realize how bad it was until it was too late to turn back.

This year was infinitely better, but there were still a bunch of sidewalks! (RANDOM SIDE RANT...WHY DO RANDOM SIDEWALKS IN THE MIDDLE OF NOWHERE HAVE TO EXIST? I mean, I get why they're next to roads and all that, but SERIOUSLY, PEOPLE? WHAT IS THE POINT OF A RAISED PLATFORM OF GRASS? IT JUST COMPLICATES MY LIFE /rant over) Most people don't think twice about them, but to me they are so frustrating! If I concentrate and if they aren't too high, I can sometimes manage them, but oftentimes I just end up leaning down and climbing over them. It's awkward, but somehow asking for a hand would seem even more awkward...During times like these, I realize that I still have a way to go before I'm comfortable with my disability.

My reading nook!
And tomorrow, after my classes (organic chemistry—wish me luck!—and psychological disorders and dysfunctions), I'm leaving for Labor Day weekend, where we'll have our annual family gathering on an island on the Cape. I'm a little sad to leave my college friends already, even if I'll be back again in a few days. At the same time, if the weather comes through, it will be amazing to swim in the ocean and have a bonfire on the beach and catch up with family! 

Sorry for the stream-of-conscious update...there's just so much going on in my life that it's hard to put it all together! Hope all is well with you guys. :-)


  1. Cute room! Glad you're back :) figured I should de-lurk, I found your blog shortly after my almost 1yo was diagnosed with CP a few months ago, it's such a great voice for me to hear! I hope your school year is great, no tips on organic chem, I managed to escape that one somehow...

    1. Hi Laura! Thank you so much for taking the time to de-lurk! It's always nice to hear a bit more about my readers (and it reassures me that I'm not just writing to myself, haha!). Your sons are too cute!

      I know that everyone's journey with CP is different, but if you ever have any questions or if you just want to talk, feel free to send me an email at :)

      Thanks again for your kind words...they mean a lot. :)

  2. Sorry, I know it is WAY inappropriate but I am totally cracking up at your sidewalk rant. I have those rants in my head all the time. That make no sense, I mean (in your case) it is a sidewalk. But come on who thinks these things up? Just to mess with us :)

    I love your pictures and am so glad that this year's start is much better for you. (I was worried). That you took your friends up on their offer and by the way they probably didn't notice they were "walking at your pace". I bet they just felt they were walking with their friend.

    Have a great long-weekend. Maybe I'll see you at our favorite restaurant!

    1. Hahahaha I love that you can relate! There are so many things in life that don't make sense! ;)

      And thank you so much for pointing out that my friends probably didn't even notice that they were walking at my pace :) Sometimes I think I overestimate the "burden" that my disability puts on other people, so I really appreciate your perspective!

      I had an awesome weekend (planning on writing a post on it soon!)...wish I could have stopped by our favorite restaurant though...SOMEDAY I will see you there, haha. :)

  3. So happy to see your update, K!! I totally love your room. I am glad your friends are including you and that they pressed. Sometimes we all need friends that press to include us! Sorry about all your pet problems. Hope your dog feels better soon. I am guessing no news on your cat? Hugs and have a great year!

    1. Thanks for stopping by! I completely agree that we all need our friends to press us sometimes, and I'm so glad they did. :)

      My dog is feeling much better, but no news on my kitty. :( I wish I could say that we found him, but as they say, it's better to have loved and lost than never to have loved at all!

      Hugs back! I always appreciate your input!

  4. Welcome back to school, sweet K! I love your room and the homemade posters are totally awesome (what a great idea!! btw, I ordered a huge airplane for Tucker's wall a couple of years ago from a company called Wall Monkey - they do custom stuff but it's sticker art on the wall and expensive so your idea seems much much better). I really do doubt that your friends felt like they were taking it slowly - they were just walking with you. When I walk with Tucker, I never think about it being slow or fast, I just walk. I'm positive it is the same for them. And so glad that this years picnic was better and yeah, sidewalks? Weird that they raise them up. Now, I have to wonder why. I hope your Labor Day trip was great, too!!

  5. I think it's so interesting, your feelings about sidewalks because I LOVE THEM and would love if they (and pavement) were everywhere! They are my saving grace, as grass and dirt and anything else is so hard to push through. (Totally understand your difficulty with them, though!) PS I love Finding Nemo:


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