Monday, August 26, 2013

Sometimes I Feel Inauthentic...

Let me start by saying that it is such a privilege to blog for you guys and I am so flattered that anyone even thinks that what I have to write is worth reading. Because, well, time is a finite thing and to think that you guys are willing to spend a few minutes reading my blog...that is so humbling, friends. So, so humbling. I want to reach out to each and every one of my readers and say thank you from the bottom of my heart.

But sometimes I feel that this blog only shows a tiny little part of who I am as a person. Most of this post is stream-of-consciousness, but when I write other pieces, I tend to read them over, edit, cut things, add things...and the result is still something from my heart, but dare I say that it's an idealized part of me?

Everything that I write on here is true and I try to be as authentic as possible, but for better or for worse, I am so much more than this blog. Most of these posts are about cerebral palsy or disability in general, about dealing with medical-y stuff and and coping with/embracing a part of myself that many people might consider to be a flaw or a tragedy. And I love that. I love sharing a part of myself that I sometimes feel the need to hide or guard when I'm not around people who "get" me. I am passionate about disability and treating others with the kindness and respect that they deserve regardless of special needs.

But I don't want to mislead anyone. In many ways I am just a teenager. I act ridiculous with my friends...we throw glitter at each other, laugh ourselves breathless, and make macaroni and cheese that has waaay too much cheese...we write poetry at midnight on a Saturday and romanticize goldfish and celebrate Christmas in July. Sometimes I argue with my parents and brothers about stupid things, sometimes I slam my door and sometimes I whine about my life and sometimes I wish I didn't have cerebral palsy at all. And for the purposes of full disclosure, it is 1:00 in the morning as I am writing this post, and my mom asked me to go to bed at a decent hour...but then the words started tumbling out and so there you have it: Simply by writing this post, I am disobeying a direct order from my mom.

And I feel like the people I know outside of blogging see one side of me, and you guys, my see another side. Both sides are a part of who I am, but I guess I just want to remind you that that other side exists. Cerebral palsy has very much shaped me as a person, but most of my friends from outside of the blogging world (I'm hesitant to refer to these people as "real life" friends because I think of this as real life too) don't really think about me in terms of my disability. Last year, for instance, my roommate said that she'd sort of forgotten about my cerebral palsy, even though it's obvious from my gait.

It's not something that I will ever forget about, this condition that is both a blessing and a curse. And I will continue to blog because I love this amazing community of people who understand. I love feeling that I can make a difference in my readers' lives, even if my words help only one person. Reaching out to others with my words is a privilege.

But behind this blog, I am a person. I have flaws and quirks and I am far from perfect. Sometimes I am confused and lost and anxious and unsure. Sometimes I watch cat videos in my pajamas all day.

And in the children's hospital that I spent so many hours at, there's this giant wishing fountain. Every now and then I would tug on my mom's arm and ask her for a penny so that I could make a wish. There were so many coins in that fountain, and sometimes I cry when I think about the parents whose children were fighting for their many coins in that fountain were from those parents? How many parents tossed pennies, nickels, dimes, quarters into that fountain and wished for their children to survive another day? Meanwhile, ladies and gentlemen, I wished for ice cream.

So you see, though I am trying to be the best person that I can be, I still have much to learn. Luckily for me, I can't think of a better classroom than life itself. So here's to imperfection! (Maybe I won't even edit this post!)


  1. Ice cream is a delicious thing, and for a anyone who is battling super serious stuff, sometimes the simple wishes say it all. In battling my husband's illness, I sometimes wish for a day when it all is so normal that we can put on worry on the more mundane. I hope you got that ice cream.

    You're wise beyond your years, and I just wanted to say thank you for sharing your heart and your struggles, but also your successes!

  2. Oh Kerry, you are more than this blog. Just as Bron is more than Coop's mom and blogger. I am more than a parent of great kids and Kristi is more than trying to find that world of empathy and wonder. None of us are saints or martyrs. We are just real people doing the best we can this hour, this minute, this second.

    We are more than our blogs, every one of us.

    I would love it if you showed us more of your glitter parties (oh then Allie would want to be invited--so maybe not) but this blog, this world is one that you define. The one area in our lives that we have complete and utter control.

    I guess my long-winded point is, that this world is just as real as the person sitting next to you on the bus. But we get to see the insights only you can share and our lives are better for it.

    And I know that my day is much better picturing you having a pajama day with purple glitter. :)

  3. I love reading about you! I love hearing about your successes and challenges. You inspire me as a mom of a tiny 5 year old with CP.

  4. Here's to imperfection, my lovely glitter-throwing friend. I know what you mean about having readers not really see all sides of us, and our in-person friends not seeing them either. But also, I think that can be said for everybody. We don't always interact with certain friends the way we do with others. Like if I like both x and y, but one friend likes x, and the other y, I'm still me, they're both them and OMG I'm making this dumb.
    I just want you to know that I understand exactly where you're coming from. You're more than a giggling cat-video-watching teenager. You're more than a CP awareness spreader. You're all of them and more than either of them. And I'm proud to know the you that you share. (and I cannot get the glitter throwing out of my head - that stuff SUCKS to clean up!)

  5. Kerri, of course you are this and more! Blogging is strange like that you often get to portray your best bits! I love that you wished for icecream it reminds me of Pepper at a Buddhist temple! I have a lot more I could write about too but can't right now as life is often complicated! Much love to you xx

  6. Each time I read you, I like you more. You have a wonderful soul.

    And yes, blogging is a bit of a show - I wrote a slightly edgy post lately, which had SO many responses by bloggers saying they understood exactly - we present our vulnerabilities, strengths, personality...but only so much as we allow. And that separates this from 'Real Life' because there's no backtracking there - what's done is done, and no edit button can undo it.

    But you're not inauthentic. You're a blogger, and a damn good one at that.

    We all relate in different ways, and in the world of the blogosphere it's expected that there are things which will remain too private, too mundane or too irrelevant to share, though they factor in our day-to-day lives.

    You don't need to apologise, but I loved the window into the rest of your life.

  7. Whether you realize it or not, it is widely apparent that you are so much more than this blog, and CP. All of your experiences so clearly play into your intelligence and insight, regardless of the subject matter you write about here. No need to thank, or apologize, and we'll happily keep reading along!

  8. I LOVE this post because it does seem so very YOU.


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